The Sunday Times columnist Catherine Lim (not the author) today mused about the tussle in US over severely brain-damaged Theresa Marie Schiavo. Her husband had succeeded in a bid to remove her feeding tube, insisting that she would not have wanted to be kept alive like that. Meanwhile, her immediate family insisted too that there was still hope for her as she exhibited signs of consciousness in that she smiled and responded to their attention. Both camps had been battling each other for years.
I can only imagine the pain gnawing away at her parents and siblings, watching their beloved daughter and sister waste away bit by bit over the years, going to bed each night filled with hope that the next day would bring good tidings, and waking up every day to the tormenting realisation that for today, hope was dead. And with that insight, I'm sure their hearts died a little too.
I can't comment on her husband Michael Schiavo though. Accusations of him lusting after insurance payouts aside, I can't really pass a judgement on a man who apparently had already embroiled himself in affairs with two women within three years of his wife's collapse. Rationally and intellectually, I can understand the loneliness and weakness of the flesh that comes with an enforced celibacy, but really, it's not surprising that people have questioned how devoted can such a man be.
I would never want my loved ones to come to blows in the event that I should end up in a persistent vegetative state with little hope of awakening. It may seem morbid, but I have given some thought to establishing a living will soon, perhaps after marriage. God forbid that my husband and parents will be slugging it out in court over whether or not to pull the plug on me. More importantly, I think that personally I would rather be allowed to go early, with dignity and no extra cost to my loved ones even though I know they would fight tooth and nail for my life with the merest glimmer of hope.
It's such a small world, because later on in her article, Lim goes on to talk about how the whole saga got her thinking about the three deaths she has encountered in this past one month. And one of them, according to her, was the death of a premature baby who had been in the ICU for seven months. Baby Hannah. And this was like a small lightning shock for me, because how many Baby Hannahs are there in Singapore who are premature, had been in the ICU for seven months, and had just passed away in the previous month?
Baby Hannah was my colleague's, let's call her L, daughter. Born exactly three months premature, she was a teeny wee bundle at birth. With her lungs and eyes not developed fully then, doctors predicted that Baby Hannah was most likely to be almost completely blind in future. In fact, L told me before that Baby Hannah was almost given up upon at one time, but being the feisty little fighter that she was, she clawed her way back.
When I joined the company, she had already been in hospital for three months. Pinned up on the walls of L's cubicle were printouts of Baby Hannah, tubes and all criss-crossing her tiny body. When L showed us albums with Hannah's pictures, it was all we could do not to cry, because in that album too were pictures of many other ICU babies, too heartbreaking to express in words. But I never once saw or heard L lose heart, or voice any bitterness.
When she showed us pictures, it was always with a fond smile while we struggled to find appropriate platitudes. L shuttled between numerous clients' offices everyday, and still managed to find time to run to the hospital twice ever day to be with Baby Hannah and hold her and tell her she's loved. This was really important to her as she told me before how sad it was because there was an ICU baby boy with cerebral palsy who didn't seem to have any visitors, not even his parents. At work, in the office, she was upbeat and unfailingly cheerful to the extent that it was only about a month into my work that I found out she had a very sick baby daughter. Through it all, she never once complained about the burden she and her husband had to bear; in fact, they even bought a bigger new car to ferry Baby Hannah around in comfort once she could be discharged from hospital.
On chu san of CNY this year, I found myself with ony three other souls in office, the rest having taken leave. One of them was L, and being bored and lazy with noone around, I chatted with her and found that Baby Hannah was not doing so well lately. She had developed some pressure problems in her organs and, as I understood it, was not coping well since her lungs were already very weak. And about one or two weeks after that, we received an email message in the morning from the boss that started thus: "I regret to have to inform you colleagues that Baby Hannah has gone home to be with the Lord...".
I remember that day well, because it was the day of Chorale's
Lei Yu performance. Seven months in the ICU. I wanted so much to go to the wake, but couldn't.
It's been about a month after Baby Hannah passed away and I think, after reading what Lim wrote, that it's true that Hannah's life, though short, had been extraordinarily blessed. She had devoted parents who loved her and did their best for her, and she had in return blessed them with the discovery of a strength and love from deep within that they had perhaps never realised themselves capable of before.
It is said that Jesus loves the little children, and I am sure that Baby Hannah is one of the blessed and loved. L says that she'll take a long time to recover, but is hoping to have kids again. I hope and pray that her next pregnancy will be easier and that Baby Hannah will bless her mother with another child. God Bless.